With Evan being my first and only child, this is all I know about taking care of a baby. This is my normal. Our normal. I try not to compare his development with other children, especially healthy full term babies. In the beginning I assumed the preemie aspect was why he struggled with development but it is obvious that his condition has been playing a roll as well. His calorie needs have been taking over and have stunted growth and motor abilities. I do find comfort knowing that there are other children, with Evan's condition, who had some physical motor delays as well. But I am very optimistic that he is picking up the pace and is on his way to the motor world.
Snacking like a big boy
There is no doubt that this kid is a genius. His little brain is soaking things up left and right. He is learning so quickly and knows so many things that I probably don't even realize. He seems to understand what I am saying 95% of the time but just can't communicate back to me completely. You can tell that he wants to move around badly. He wiggles and squirms on his back and could probably get around the room that way if I let him. He desperately reaches and points towards things he wants. I figure since he can't walk to where he wants to go I'll walk for him and he can lead the way. And it usually will be right out the front door since he loves to be outside.
Trying to escape
Oh Yeah- I can stand
(when I feel like it)
(when I feel like it)
The TV show Bubble Guppies are the new best thing for Evan. Other children shows don't do it for him but this one tops the cake. He giggles at the characters with a huge smile on his face and I find him 'dancing' and clapping along with the songs. Luckily, DVR has come in handy so we can watch it at the appropriate time. It's hard to say no to something he obviously likes but I try not to abuse the TV. I will let him watch an episode or two while I clean up his bath stuff and get breakfast ready. Fortunately, it is educational and entertaining at the same time (and the songs are incredibly catchy).
That's a Bubble Guppie smile
Love this boy
I just want to let you know that your approach to chronic illness in children is inspiring. Your blog helps set a model for other people to follow. I look forward to your next posts! Keep it up!
ReplyDeleteGood article, like it! Appreciate the patience in putting up such determined blog
ReplyDelete. Thanks for the time and effort.