Wednesday, December 25, 2013

Merry Christmas!

Merry Christmas and Happy Holidays!!!

We have been busy, busy, busy!! I know, I know I sound like a broken record. But there is LOTS to catch up on! Hopefully I'll get back into weekly blogging soon! Until then enjoy some Evan cuteness to spruce up your holiday spirit!

The Christmas Tree hunt..

My loves!

Found it!


Snowy Day!

Love this kid!

Would you like to do something for Evan for Christmas? 

Please LIKE and SHARE The FIRST Foundations Facebook Page

Or go to their SITE and learn more about Ichthyosis and the efforts being made to help others!! 



Tuesday, December 3, 2013

One Lucky Little Guy

We are privledged to have an enormous amount of support for Evan thanks to friends, family members and even strangers. A few weekends ago, a fundraiser was held in honor of my "Lil Warrior". My sister in-law's roommate from college, Michelle, and her family wanted to put together an event to support Evan. Michelle's mother Diane and her fiance Wally are members of the Widows Sons, a motorcycle association, whose chapter is based out of Massachusetts.

They hosted this event at a local restaurant. Members and friends of the Widows Sons attended while participating in a raffle and singing some great karaoke tunes. Not only was everyone there incredibly warm and friendly, they were beyond generous. When we arrived, we walked in to see a table dedicated to Evan including his favorite snacks, balloons, books, crayons and Aquaphor. Evan enjoyed the evening walking around and playing with the other children who were there.

As the night came to a close, the Widows Sons had a special surprise in store for Evan. He was made an honorary member and given his own custom "Widdows Kiddos" vest. Embroidered on the front and back include his nickname "Lil Warrior". I was so touched and overwhelmed by the generosity of these kind people. People I had only met for the first time in my life were taking the time to support my boy.

It is hard to find words to express our gratitude. And the weight that is lifted off of our shoulders, to worry less about medical bills, is an amazing feeling. Thank you to everyone who came, helped, donated and participated in this event. We are so incredibly grateful and are so lucky to have so many gracious souls in our lives. Evan is one lucky little guy!