I cannot not believe how successful this fundraiser has been and I could not have done it without all of your help. Thank you, thank you, thank you!! It brings tears to my eyes to think of how generous people are and willing to help support a condition that is so rare and unknown to much of the public. This fundraiser was an excellent way to raise awareness for Ichthyosis. More than 10 towns in Connecticut participated and states include Rhode Island, California, Illinois, Pennsylvania, Massachusetts, Maryland, New York and New Jersey (let me know if I missed your state). And my brother and his family were raising awareness up in Prince Edward Island, Canada. I'd say that is a nice start for my first FIRST fundraiser.
Again I can't thank you all enough. I am truly blessed to have so many caring people in my life and Evan's. Hopefully our efforts will help find what we are looking for someday, a cure and acceptance by all. Check back soon and hopefully I will have that 'Grand Total'... sooner than later!!!
Evan on Memorial Day 2012