Wednesday, April 25, 2012


  • Ichthyosis Awareness Month, IAM, starts next week. And it's not too late to get involved. Everyone is welcome to participate in the 'It Makes Cents to Help FIRST' coin collection fundraiser. Read more about this fundraiser HERE.

  • The Mets and the Phillies will be supporting the FIRST Foundation during Ichthyosis Awareness Month.  During games on May 7th at the Philles and May 30th at the Mets, FIRST messages will appear on the scoreboards to help raise awareness. A portion of each ticket will go to the FIRST Foundation. Tickets are still available HERE. We are going to the Mets game on the 30th. Come join the fun.

  • Evan will be TWO YEARS OLD in a little over a month. I can't believe how fast time flies. He makes me smile everyday and fills my life with joy. We recently saw a Neurologist and he was ordered to have an MRI. They found that structurally his brain is perfect. Though there was some concerns about under-developed spaces of myelin which we are hoping intensive therapies will help repair. With all the poking and prodding he goes through from all the doctors we see and therapist that visit, he is a very happy boy. Here is some laughing cuteness for you to enjoy!!


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