Friday night I couldn't sleep after seeing a picture of a Harlequin baby being misused for attention on Facebook. Reading the comments m...

I hope everyone had a very Merry Christmas and a Happy Holiday! The new year is just around the corner and more of our family celebrations h...

This post is written with a heavy heart. The events in Newtown, CT have strongly impacted my soul. I am devastated for the families of the v...

Last week I posted, Sharing Stories , and explained that I would be a guest writer on the blog, Confetti Skin, Beauty Within . Harlequin ich...

Wow. Two and a half years have past since we welcomed Evan to this world. And on that day this point seemed so far away and no where in sigh...

The past few weeks, Harlequin Ichthyosis has been the topic on a very informative blog, created by some friends in the Ichthyosis community....

Yesterday Evan had his monthly ENT appointment. These visits are crucial for us since I am obsessed with keeping his ears clean and free of ...