February 29, 2012 Today is a day to raise awareness. There are many people in this world that are facing challenges in life living with a...

I have had a pretty easygoing life.. I enjoyed a great childhood, had a blast with my friends in high school, loved college and studying ab...

The month of May is Ichthyosis Awareness Month. I will be participating in FIRST's "It Makes Cents to  Help FIRST" fundraising...

Save the Dates! Last year for  Ichthyosis Awareness Month , FIRST sponsored an  evening at the Philadelphia Phillies game . It was so well-r...

Welcome to my blog!!! I can honestly say this is the first time I have ever created or been interested in writing a blog! My mission is to r...

www.rarediseaseday.org Rare Disease Day is February 29, 2012. Find out more information about Rare Disease Day 2012 here . Let's spr...