February 29, 2012
Today is a day to raise awareness. There are many people in this world that are facing challenges in life living with a rare disease. Whether the disease is visible to the eye or not it is affecting the lives of millions. Not only are there no cures, many do not even have treatments for their rare disease.
Today is a day to raise awareness. Not only about Ichthyosis but for every human being, of every age, race, or nationality who lives or cares for someone with a rare disease.
Today is a day to raise awareness. "In 'Solidarity' we are 'Rare but Strong Together'".
Read more stories and learn more at www.rarediseaseday.org
Evan supporting "Jeans for Genes" on Rare Disease Day
(AND these are the first pair of jeans he has EVER worn)
Evan supporting "Jeans for Genes" on Rare Disease Day
(AND these are the first pair of jeans he has EVER worn)
I just got chills. Together we are strong. Thanks DeDe for all of your efforts in raising awareness.
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