Sometimes it is hard to wrap my head around the fact that Evan cannot live without Aquaphor. Seems hard to believe that something as "s...

It's Ichthyosis Awawreness Month!! A month we recognize this life long disorder and come together to spread awareness. For the past few ...

We have been busy, busy, busy! I feel like I am repeating myself! It's hard to blog these days while caring for these two active boys! W...

We have had quite the winter here! Not only were temps way below 0 many days but the snow was crazy too! I'm so sick of snow! Which is u...

Celebrating World Rare Disease Day 2015 The reason why I blog is to raise awareness for ichthyosis. I want others to know about it, ...

Enjoy some cute pics of Evan when he was a baby. And Vincenzo wearing the same outfit years later!!! :-) Time is flying on by!!! Evan...

The life I live would not be a life at all, if ichthyosis was not a part of it. Evan is my life. (And now, his little brother too). And thou...