Celebrating World Rare Disease Day 2015 The reason why I blog is to raise awareness for ichthyosis. I want others to know about it, ...

Enjoy some cute pics of Evan when he was a baby. And Vincenzo wearing the same outfit years later!!! :-) Time is flying on by!!! Evan...

The life I live would not be a life at all, if ichthyosis was not a part of it. Evan is my life. (And now, his little brother too). And thou...

Evan visited his Neurologist yesterday to follow up with his developmental progress. He, as always, was a trooper especially since he is jus...

I created a Facebook page so that everyone can keep up with my little guys at a finger's reach. I told myself I wouldn't, as I have...

The Holidays are rapidly approaching and Evan is just delighted! He is very much into Christmas this year and Santa and PRESENTS!!! It is su...

This year has been eventful. My pregnancy was quite the adventure from start to finish including a hospital stay at 36 weeks due to high cal...