We did not win the "lottery"!!!!!! According to genetics, they did not find the gene which causes tuberous sclerosis in Vincenzo. ...

We have delt with our fair share of medical challenges with Evan. From a life long diagnosis and a two month NICU stay due to a premature b...

A week after Evan was born National Geographic aired the show Extraordinary Humans: Skin. The show followed two young adults living with rar...

Evan is a BIG BROTHER!!! Vincenzo was born on August 27th and we have been loving on him for the past few weeks! Evan is delighted t...

We have been pretty busy so far this summer. Though we have a love/hate relationship with the weather and high temps, we try not to let it h...

We celebrated Evan's 4th Birthday on Monday and had a birthday party for him last weekend. It is quite amazing how time flies and how my...

During Evan's first Spring Break, we had a very special guest stay with us. Carly, author of Tune Into Radio Carly , came to stay with u...