During Evan's first Spring Break, we had a very special guest stay with us. Carly, author of Tune Into Radio Carly , came to stay with u...

Yay! It's May! Not only is May my favorite month of the year but a month we celebrate while raising awareness for Ichthyosis. A lot has ...

I am so excited to be able to send in our donations to FIRST! Thanks to all of you, we are sending    $1,141 To FIRST in honor of Ichth...

My motivation and inspiration to help raise awareness for Ichthyosis is all because of my precious son Evan. He puts a smile on my face no...

-We are getting closer to May which means it's Ichthyosis Awareness Month (IAM) countdown! This year to support FIRST for IAM, I'm ...

So exciting to announce that I am hosting another T-Shirt sale in honor of Evan and to support FIRST for Ichthyosis Awareness Month (IAM) ....

Today is Rare Disease Day . A day celebrated every year, on the last day of February, to honor, recognize and raise awareness for all of...