My motivation and inspiration to help raise awareness for Ichthyosis is all because of my precious son Evan. He puts a smile on my face no...

-We are getting closer to May which means it's Ichthyosis Awareness Month (IAM) countdown! This year to support FIRST for IAM, I'm ...

So exciting to announce that I am hosting another T-Shirt sale in honor of Evan and to support FIRST for Ichthyosis Awareness Month (IAM) ....

Today is Rare Disease Day . A day celebrated every year, on the last day of February, to honor, recognize and raise awareness for all of...

Tiny Superheroes already does so much good for so many special children. In celebration of their one year anniversary and their first Tiny ...

I certainly have slacked on the posts since Evan started school this fall. How ironic since I technically have "more time".  It ha...

Merry Christmas and Happy Holidays!!! We have been busy, busy, busy!! I know, I know I sound like a broken record. But there is LOTS to c...