I talk about the FIRST Foundation a lot. I am a huge advocate for this foundation and want everyone to know about it so we can help raise a...

I turned 30 this past weekend. And all I can think about is the fact that the year I was born, babies with Harlequin Ichthyosis did not sur...

This week I thought I'd share some "tips" for Ichthyosis parents, children or adults. Most of my tips obviously pertain to kid...

Wow it's May already. May is probably my favorite month of the year. It has the perfect weather, my birthday (this year the big 3-0!), m...

Ichthyosis Awareness Month (IAM) starts in ONE WEEK!!! And what a better way to begin, than to send off a nice check to the FIRST Foundatio...

I want to send my sincere condolences to all who were affected by the tragedy which occurred at the Boston Marathon. Boston is a city I hold...

Evan has made some great progress in the past year. Even though I wish he was walking and talking, it is such a relief that we have a way to...