Ichthyosis Awareness Month (IAM) starts in ONE WEEK!!! And what a better way to begin, than to send off a nice check to the FIRST Foundatio...

I want to send my sincere condolences to all who were affected by the tragedy which occurred at the Boston Marathon. Boston is a city I hold...

Evan has made some great progress in the past year. Even though I wish he was walking and talking, it is such a relief that we have a way to...

Last year on April 9th, 2012 I recorded some video clips of what Evan and I do in a day. It happened to be a day when we did not have therap...

Evan had some suspicious "pustules" on his face that were making me very nervous. When treated with bacitracin they seemed to go a...

Milestones come pretty quick and naturally for most children. Many healthy babies can typically sit independently around 6 months, roll arou...

I would LOVE to make a collage with everyone sporting their Evan's FIRST Fundraiser T-shirts ! I know with Facebook and Intsagram every...