Today is Rare Disease Day . Rare Disease Day is an international day of recognition for those affected by a rare disease. It is a day to ...

Last year for Rare Disease Day , I wrote about caring for my child with HI . This year instead of repeating the same story, I decided to wri...

-T-Shirts have arrived!!!! For those of you who already "pre-ordered", an email will be sent to you with a Paypal link for paymen...

I had a "moment" last week where I was a bit bummed about Evan's development. Luckily these moments don't last long at all...

Evan has been featured on the blog Tiny Superheroes . I was contacted by Robyn from Tiny Superheroes, a few weeks ago, telling me how inspir...

T-Shirts are ordered and printing will begin soon! I used a local company, Been Printed . I much rather support a small local business than ...

We want to wish Nusrit a very  Happy Birthday !!!!! We hope you have a FABULOUS day !!! Nusrit "Nelly" Shaheen is t...