I designed the T-Shirt for this fundraiser and was not happy with my artwork. Luckily we have an amazing artist in the family and she offere...

I created this blog almost one year ago, in preparation for Rare Disease Day . Last year I wrote a post about caring for my ...

This blog was created with a mission to raise awareness for Ichthyosis and to help support the FIRST Foundation .  It is my goal to help the...

Evan's FIRST Fundraiser  2013 To kick off the New Year I have finally made plans for a t-shirt sale. I wanted to have the t-shirt ...

New Years day is full of fun and laughter with some of the most generous people I have ever met. The Possum Queen event is a local fundraise...

Friday night I couldn't sleep after seeing a picture of a Harlequin baby being misused for attention on Facebook. Reading the comments m...

I hope everyone had a very Merry Christmas and a Happy Holiday! The new year is just around the corner and more of our family celebrations h...