tag:blogger.com,1999:blog-6113641574975321616.post5378491875168100284..comments2024-03-01T04:27:08.864-08:00Comments on ~Our 'Young Warrior' Evan~ Living with Harlequin Ichthyosis: On My Way "UP"De Dehttp://www.blogger.com/profile/04523375694078425934noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-6113641574975321616.post-62115580541765478862012-07-14T23:22:15.913-07:002012-07-14T23:22:15.913-07:00AMAZING!!!!!AMAZING!!!!!Anonymoushttps://www.blogger.com/profile/07929453370113897198noreply@blogger.comtag:blogger.com,1999:blog-6113641574975321616.post-24212819621571748352012-07-14T09:04:49.834-07:002012-07-14T09:04:49.834-07:00Wonderful post! I also have a son with with a rar...Wonderful post! I also have a son with with a rare skin disease as well. Stay strong! Sending positive thoughts your way!West Family Updateshttps://www.blogger.com/profile/18422007097983480259noreply@blogger.comtag:blogger.com,1999:blog-6113641574975321616.post-36320795044045932192012-07-13T17:15:42.625-07:002012-07-13T17:15:42.625-07:00New follower here! I have an 8 week old baby girl...New follower here! I have an 8 week old baby girl with some form of ichthyosis. I've been dealing with a lot of the same emotions as you and it is so reassuring knowing I'm not alone. <br /><br />That article is amazing! What a blessing to find it. I read it to my husband this afternoon and it made such an impact on us both. Thank you so much for posting it. We are praying for your family and sweet Evan!Kendallhttps://www.blogger.com/profile/05683155591429318772noreply@blogger.comtag:blogger.com,1999:blog-6113641574975321616.post-74778069411921481732012-07-13T15:04:55.383-07:002012-07-13T15:04:55.383-07:00Sheesh Dede.... tearjerker!!! You should be so pro...Sheesh Dede.... tearjerker!!! You should be so proud... this story is amazing, as are you. You are certainly the 'patron saint' Evan needs in his life. xo CWCarriehttps://www.blogger.com/profile/18206365176129326918noreply@blogger.com