tag:blogger.com,1999:blog-6113641574975321616.post4741496655565591430..comments2024-03-01T04:27:08.864-08:00Comments on ~Our 'Young Warrior' Evan~ Living with Harlequin Ichthyosis: Our MicroSilk TubDe Dehttp://www.blogger.com/profile/04523375694078425934noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-6113641574975321616.post-6980909802433135892013-12-29T04:16:36.823-08:002013-12-29T04:16:36.823-08:00Thank you for your concern. Unfortunately since Ev...Thank you for your concern. Unfortunately since Evan's condition is life threatening, bleach is a necessity to kill deadly bacteria. A risk we have to take in order to save his life and keep him free of infections.De Dehttps://www.blogger.com/profile/04523375694078425934noreply@blogger.comtag:blogger.com,1999:blog-6113641574975321616.post-1959265158599968982013-12-19T12:36:28.607-08:002013-12-19T12:36:28.607-08:00Do not use any bleach it is deadly. The original i...Do not use any bleach it is deadly. The original intent was for earthquake preparedness. One cap for a tub of water, it was considered poison. We knew that most people had bleach in their homes, and the benefits outweighed the risks. Anonymoushttps://www.blogger.com/profile/04930532056558210893noreply@blogger.comtag:blogger.com,1999:blog-6113641574975321616.post-84228680011760600242013-10-23T07:04:59.435-07:002013-10-23T07:04:59.435-07:00I have a almost 2 year old and the highlight of he...I have a almost 2 year old and the highlight of he day is the Microsilk tub. She usually gets 2 baths a day one morning one night. Just recently she takes double baths while she is in there which increases the release of her skin. She starts the tub by herself. The lighter flakes come off on the first bath but the second bath I have noticed she now has bigger peels coming off her skin. The only problem is the water gets warmer with each restart so you have to watch that. Tori Rotondonoreply@blogger.comtag:blogger.com,1999:blog-6113641574975321616.post-62812745939097407682013-10-22T14:09:03.928-07:002013-10-22T14:09:03.928-07:00Great!
I honestly don't lose that much skin ...Great! <br /><br />I honestly don't lose that much skin in the bath. I lose the most in bed. I haven't heard of a Microsilk bath here but my parents bought a spa - I rarely used it when I lived with them Carly Findlayhttps://www.blogger.com/profile/01368145710452826385noreply@blogger.comtag:blogger.com,1999:blog-6113641574975321616.post-26039838402184035992013-10-22T14:07:44.508-07:002013-10-22T14:07:44.508-07:00I was worried about what the skin and creams were ...I was worried about what the skin and creams were doing to my plumbing at home too - my shower ended up leaking into the shower ceiling in the flat below me. A new shower was installed and the landlord said there was a lot of build up. <br /><br />The bath looks grCarly Findlayhttps://www.blogger.com/profile/01368145710452826385noreply@blogger.com