tag:blogger.com,1999:blog-6113641574975321616.post2859228224565491823..comments2024-03-01T04:27:08.864-08:00Comments on ~Our 'Young Warrior' Evan~ Living with Harlequin Ichthyosis: What is Most Important?De Dehttp://www.blogger.com/profile/04523375694078425934noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-6113641574975321616.post-50853675817950955762013-02-21T19:53:14.146-08:002013-02-21T19:53:14.146-08:00What a cute little smartie!!What a cute little smartie!!littlegrammiehttps://www.blogger.com/profile/13366825227185661870noreply@blogger.comtag:blogger.com,1999:blog-6113641574975321616.post-43769676083751733612013-02-19T13:26:51.856-08:002013-02-19T13:26:51.856-08:00Love this post :) Evan is progressing in his own w...Love this post :) Evan is progressing in his own way, and you are an excellent parent. He has love, care and happiness around him. That's important. <br />I imagine it must be hard not being able to see steady progress. It's interesting because I never had any of that therapy as a baby and child, I just saw a dermatologist and sometimes a dietician. I think it's great new treatments for ichthyosis are quite broad, treating the whole body rather than just the skin. Carly Findlayhttp://carlyfindlay.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-6113641574975321616.post-15505733129932446842013-02-19T07:00:06.747-08:002013-02-19T07:00:06.747-08:00Aw De, you are such a great mom! Selah was smiling...Aw De, you are such a great mom! Selah was smiling as we watched the video of Evan. I cant wait for them to meet!Anonymousnoreply@blogger.com