tag:blogger.com,1999:blog-6113641574975321616.post2730658932975448199..comments2024-03-01T04:27:08.864-08:00Comments on ~Our 'Young Warrior' Evan~ Living with Harlequin Ichthyosis: Inspired by EvanDe Dehttp://www.blogger.com/profile/04523375694078425934noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-6113641574975321616.post-33507957135300003872012-09-11T21:40:10.712-07:002012-09-11T21:40:10.712-07:00You folks do not know me, but I have been followin...You folks do not know me, but I have been following your blog and the blog of several others that you also follow regarding children with EB. I have been managing the Prayers for Cheyenne Rae FB page and also have created her website at www.prayerforcheyenne.com. ON her FB prayer page it was shared with us a FB page for this little guy with EB. He was born at Auburn Memorial hospital had never seen a case like this so he was transferred to Crouse, where the doctor had only seen 2 in his entire career.<br /><br />I just wanted to share this with you, as I see this family needs your help. I am also going to send a message to Cortney and Jonahs mommy...you guys have done so wonderful with your little ones and each other, I pray you all will be able to bring some comfort to these folks. God Bless. <br /><br />https://www.facebook.com/SupportBabyEastonFriedelMelhttps://www.blogger.com/profile/10483348234463326774noreply@blogger.com