tag:blogger.com,1999:blog-6113641574975321616.post1763005092182586963..comments2024-03-01T04:27:08.864-08:00Comments on ~Our 'Young Warrior' Evan~ Living with Harlequin Ichthyosis: Why I BlogDe Dehttp://www.blogger.com/profile/04523375694078425934noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-6113641574975321616.post-45936607766776579302013-03-15T19:12:20.280-07:002013-03-15T19:12:20.280-07:00Just randomly came across your blog and I just wan...Just randomly came across your blog and I just wanted to tell you I think you son is just beautiful! I can see the joy and genuine love of life in his eyes. I also have a rare disease and find it so important to raise awareness - I was saved by blogs and online forums - so sharing your experience is sure to help someone somewhere, even if it is just encouragement or support that they are not alone. I hope as your son grows older that he will not be too bothered by the ignorance of others. You are a wonderful Mom and I'm inspired by your commitment to you son!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6113641574975321616.post-34792083399924597502013-03-04T15:05:46.611-08:002013-03-04T15:05:46.611-08:00YOU GO GIRL!!!! After all, you are an educator by ...YOU GO GIRL!!!! After all, you are an educator by trade, you just expected to teach children but now you teach adults. The more our community knows about this condition the easier it will be for E.Deb Fascianohttp://optonline.netnoreply@blogger.com