tag:blogger.com,1999:blog-6113641574975321616.post1397285356439613007..comments2024-03-01T04:27:08.864-08:00Comments on ~Our 'Young Warrior' Evan~ Living with Harlequin Ichthyosis: Raising Awareness for EB- Epidermolysis BullosaDe Dehttp://www.blogger.com/profile/04523375694078425934noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-6113641574975321616.post-35065476128954660512012-10-28T14:39:52.564-07:002012-10-28T14:39:52.564-07:00Hi there! I am privileged to help raise awareness ...Hi there! I am privileged to help raise awareness for EB and your child. Hope all is well. <br /><br />Evan uses a Rifton bath chair. It is a piece of equipment we are borrowing from a rehabilitation facility organized by his physical therapist. They are very expensive if purchased on own. Feel free to email me if you have any other questions. dede583@hotmail.com De Dehttps://www.blogger.com/profile/04523375694078425934noreply@blogger.comtag:blogger.com,1999:blog-6113641574975321616.post-60390477277158028872012-10-26T17:58:32.479-07:002012-10-26T17:58:32.479-07:00also do you know where we can get the same MicroSi...also do you know where we can get the same MicroSilk seat that evan is sitting in on this post? I think it would work great for my son. http://ouryoungwarriorevan.blogspot.com/2012/02/raising-awareness-for-rare-disease-day.html<br />thanks! Jason and Vanessahttps://www.blogger.com/profile/12406412654100300608noreply@blogger.comtag:blogger.com,1999:blog-6113641574975321616.post-60478616693134707802012-10-26T17:41:17.233-07:002012-10-26T17:41:17.233-07:00Thank you so much for posting this! my kiddo is in...Thank you so much for posting this! my kiddo is in this video and we are so thankful for your help in raising awareness! <br /><br />Vanessa Jason and Vanessahttps://www.blogger.com/profile/12406412654100300608noreply@blogger.com