My immediate reaction was to comment on that photo to try and educate the commenters and trolls. Incredibly unsuccessful. As I commented with what the diagnosis was and added a FIRST link, I noticed it was useless because at least 30 new comments were coming in at the same time. Many people were commenting that it was baby Brenna and referred people to her site. Fortunately, I knew it wasn't Brenna since I had seen this picture when Evan was born. I fell asleep aggravated as the comments accumulated over 10,000 and the likes were reaching 500,000. There was obviously too many people wrapped up in this viral photo and impossible to educate them when thousands of comments were being posted as the minutes passed.
I woke up early Saturday morning eager to try and educate others about HI, especially the ignorant trolls. I decided to make a picture collage of Evan with information on what the condition was and where to go if people really wanted to help. This is what I came up with. (Please excuse my errors. I was fired up and didn't check spelling)
click to enlarge
The top picture is of Evan at 9 days old and the bottom at 2 1/2 years. There are some mixed feelings with people I know about 'putting Evan's photo out there for all to see'. The top photo is already on my blog as well as a few others, with my permission. And as much as it is a photo that maybe frightening or hard to look at, it's the truth and is what Evan looked like when he was born. There is no sugar coating it, it is what it is. I know that there are evil and ignorant people out there but the way I look at it is that education should be honest. And that is what this picture represents. No, I have no control what the creeps and trolls do but if I don't educate others then misconceptions will continue.
My boy is beautiful. He is an amazingly happy little man and always has a smile on his face. He will grow up knowing that he is perfect just the way he is.